Findings confirm that young people with CKD share some common transition issues. This review provides a greater understanding into the complexities that practitioners must account for in planning successful transitions for a vulnerable group of young people. Young people’s needs need to be understood and accounted for if transitions, yet current practice appears to be misaligned and dominated by linear health-related pathways.
The review, which was partly funded by the Wales Kidney Research Unit, found that the gap in culture and practice between child and adult services are often too big for young people to negotiate. Integrated health and social care services need redesigning to better accommodate the influence of individual and socio-ecological factors.
Effective mechanisms for engaging young people in research and service development need to be established. Future research needs to broaden beyond a medical lens and be led from alternative multi-disciplinary and social care perspectives, and by young people themselves.
Importantly, this review summaries and provides evidence to inform service development across health and social care and the identification of working practices most effective in transitions.
For further information and details on the research visit:
English and Welsh: The National Centre for Population Health & Wellbeing Research (NCPHWR)